Noah was born on February 27, 2008 he was 10 pounds 7 ounces following a normal pregnancy and delivery. His face was slightly blue which was attributed to his fast delivery. After having his first bath he came back to me with a pulse ox on, nothing to worry about the nurse assured me just a precaution. If he stayed above 96% through the night it would be removed. When the on call pediatrician arrived the next morning they discovered something was wrong with Noah's Heart while they were unsure of what it was he needed to be transfered right away. After several phone calls our pastor and family were able to say goodbye to Noah as they took him away.
When Noah arrived at Saint Elisabeth in Ohio they found that Noah had Truncus Arteriosus type 1. This meant that while his heart was forming the St. Elizabeth decided it would be best if Noah went to Children's in Pittsburgh for the actual surgery.and aortic artery didn't separate and form properly. They would need to go in and separate them using substitute vessel to repair it, there would also need to be a patch put in to divide the bottom ventricles. This type of condition just 30 years ago resulted in death without surgery ranged from 2 weeks to 3 months, with almost 100% mortality by age 1 year . The doctors at
Noah was transported to thein Pittsburgh where their doctors confirmed Saint Elisabeth's findings that Noah did indeed need surgery for Truncus Arteriosus type 1. I was finally released from the hospital and able to rejoin my son in Pittsburgh at this time. The doctors decided that the surgery would take place on the morning of March 3, 2008. Through this time it was a great help that we could focus solely on Noah trusting our other children to be taken care of by our church family
On March 3, 2008 the Doctor preformed speedy recovery in the CICU. We continue to keep an eye on him when sick because the increased lung pressure can put strain on the vessel, as such we've spent time back in the ICU for respiratory infections. Noah will need to have the vessel replaced as he grows to keep the . Ideally, he wont need another surgery for 5 years. Noah has a procedure scheduled for mid July that will give us a better idea of how his heart, lungs, and vessels are growing, setting a more accurate date for his next surgery.on him. Thankfully he was able to use Noah's own vessel with him being such a large baby, which will hopefully result in him having less surgeries in the future. Noah came home March 10th after a
Thanks to theand and your generous donations Noah can lead a happy life. More operations will be needed but thanks to the American Heart Association and the fund raisers they preform maybe one day in the future we will find a solution and be able to permanently fix these problems of the heart.
Noah is over a year old now and continues to grow and learn like any other toddler. From the deepest depths of our hearts we thank you for your donations and continued support of the American Heart Association