WOOWOOPALOOZA

let the journey begin..............

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I KNOW WE ALL ARE HAVING HARD TIMES ONE WAY OR ANOTHER.
I DO DONATE TO SOME CONTRIBUTIONS THAT NEED HELP TO HELP
OTHERS. THERE ARE SO MANY TO DONATE TOO. I KNOW A LOT OF
PEOPLE WANT TO GIVE TO OTHER COUNTRIES, BUT WHAT ABOUT
US, RIGHT HERE AT HOME. THERE ARE SO MANY AND SOME PEOPLE
DON'T CARE. YOU HAVE BIG STARS GOING TO OTHER COUNTRIES
TO ADOPT KIDS FROM THERE. THEY SEND BIG AMOUNTS OF MONEY.
THAT PICTURE JUST DOES NOT LOOK RIGHT TO ME I AM SORRY.
SOME OF THESE PEOPLE WHO HAVE IT ALL NEED TO START THINKING
OF THE PEOPLE HERE. WE HAVE BOYSTOWN FOR ALL KIDS, CANCER
FOUNDATION, HEART FOUNDATION, DIABETES AND IT GOES ON AND
ON. HOW MANY KNEW IF YOU CUT 6 INCHES OF YOUR HAIR YOU
CAN HAVE A WIG MADE FOR ONE CHILD? I HAVE MANY STORIES I
COULD SHARE WITH YOU. BUT I CHOSE ONE, AND I HOPE YOU TAKE
TIME TO READ THIS AND TO THINK. THERE IS MORE YOU CAN DO,
YOU JUST DON'T HAVE TO HAVE MONEY. BUT THESE BIG STARS NEED
A GOOD KICK. LIKE I SAID PLEASE TAKE TIME TO READ THIS STORY.
IT'S TRUE AND IT IS VERY SAD THAT THIS BABY WAS BORN WITH A
PROBLEM THAT WILL MAKE HIM HAVE SURGERIES OVER AND OVER.

This was written last year and the only thing that has changed is he may require the surgery again sooner rather than later  

Noah was born on February 27, 2008 he was 10 pounds 7 ounces following a normal pregnancy and delivery. His face was slightly blue which was attributed to his fast delivery. After having his first bath he came back to me with a pulse ox on, nothing to worry about the nurse assured me just a precaution. If he stayed above 96% through the night it would be removed. When the on call pediatrician arrived the next morning they discovered something was wrong with Noah's Heart while they were unsure of what it was he needed to be transfered right away. After several phone calls our pastor and family were able to say goodbye to Noah as they took him away.

When Noah arrived at Saint Elisabeth in Ohio they found that Noah had Truncus Arteriosus type 1. This meant that while his heart was forming the Pulmonary artery and aortic artery didn't separate and form properly. They would need to go in and separate them using substitute vessel to repair it, there would also need to be a patch put in to divide the bottom ventricles. This type of condition just 30 years ago resulted in death without surgery ranged from 2 weeks to 3 months, with almost 100% mortality by age 1 year . The doctors at St. Elizabeth decided it would be best if Noah went to Children's in Pittsburgh for the actual surgery.

Noah was transported to the Children's hospital in Pittsburgh where their doctors confirmed Saint Elisabeth's findings that Noah did indeed need surgery for Truncus Arteriosus type 1. I was finally released from the hospital and able to rejoin my son in Pittsburgh at this time. The doctors decided that the surgery would take place on the morning of March 3, 2008. Through this time it was a great help that we could focus solely on Noah trusting our other children to be taken care of by our church family

On March 3, 2008 the Doctor preformed open heart surgery on him. Thankfully he was able to use Noah's own vessel with him being such a large baby, which will hopefully result in him having less surgeries in the future. Noah came home March 10th after a speedy recovery in the CICU. We continue to keep an eye on him when sick because the increased lung pressure can put strain on the vessel, as such we've spent time back in the ICU for respiratory infections. Noah will need to have the vessel replaced as he grows to keep the proper blood flow. Ideally, he wont need another surgery for 5 years. Noah has a procedure scheduled for mid July that will give us a better idea of how his heart, lungs, and vessels are growing, setting a more accurate date for his next surgery.

Thanks to the American Heart Association and and your generous donations Noah can lead a happy life. More operations will be needed but thanks to the American Heart Association and the fund raisers they preform maybe one day in the future we will find a solution and be able to permanently fix these problems of the heart.

Noah is over a year old now and continues to grow and learn like any other toddler. From the deepest depths of our hearts we thank you for your donations and continued support of the American Heart Association



NOAH AT AGE 15 MONTHS

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NOAH AT AGE 15 MONTHS

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OH WHEN I HEARD HE MIGHT HAVE TO HAVE SURGERY
EARLIER, I THOUGHT THE POOR LITTLE GUY IS NOT EVEN
2 YET. SO I ASKED WHY WOULD THEY HAVE TO DO IT
EARLIER. THIS IS WHAT I WAS TOLD.

Surgery sooner because they tried to use his own vessel instead of using a replacement. If it works then that means less surgeries but if it fails then a surgery sooner to replace it. Even on Noahs good days tests have shown stress on it so it looks like he will need one sooner rather than later. With him getting sick 10 days ago and having a relaspe two weeks after coming home from orginal surgery, it's just too much in a year so they are thinking about next summer but not a for sure yet. Doc says he will prolong it as long as Noah continues to seem healthly but not to expect the orginal date (5yrs old) for next surgery, More like when he's 3 or 4 and this time they will replace it and we will then hopefully be assured another surgery every 5 to 7 yrs depending on how fast he will grow

IN MY HEART ALL KIDS ARE LITTLE ANGELS AND IT
TARES ME UP TO HEAR THINGS THAT HURT THEM. I
KNOW A COUPLE OF KIDS THAT HAVE TO GO
THROUGH A LOT.  I CALL THEM SPECIAL ANGELS. I
FEEL LIKE THERE WAS A REASON FOR IT EVEN IF WE
DON'T UNDERSTAND, SO GOD MADE THEM SPECIAL.


WHEN I SAID YOU DON'T HAVE TO HELP WITH MONEY
ONLY, PLEASE PRAY FOR THIS LITTLE ANGEL. THERE
ARE SO MANY OF THEM WE DON'T KNOW ABOUT. SO
WHEN YOU PRAY, THINK ABOUT OUR PEOPLE HERE. I
FEEL LIKE Image and video hosting by TinyPicAND THE MORE THE
BETTER.  Image and video hosting by TinyPicAND THEM. SO LET'S
GIVE THEM OUR  Image and video hosting by TinyPicImage and video hosting by TinyPic

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